Schwannomatosis is a rare form of Neurofibromatosis (NF). This disorder is most commonly characterized by debilitating pain caused by the growth of tumors that put pressure upon one or more of the cranial, spinal or peripheral nerves and the surrounding tissue. Some patients also display signs of neurological dysfunction. Most tumors are benign, although occasionally, they may become cancerous.

Depending on the location of the tumor, the symptoms associated with schwannomatosis may include:

  • Extreme debilitating pain
  • Difficulty urinating or bowel dysfunction
  • Headaches
  • Visible lumps or swelling in areas where tumors have formed under the skin
  • Numbness
  • Vision changes
  • Muscular weakness, including weakness of the facial muscles

Schwannomatosis is a difficult disease to diagnose because symptoms vary greatly from patient to patient and because many of its symptoms are common to other diseases.

Proper pain management is essential for anyone who is diagnosed with this disease, particularly for those whose tumors are inoperable. At the Kaplan Center our physicians have years of experience treating patients with chronic pain conditions, including schwannomatosis.

At your first visit, your Kaplan physician will take time exploring the onset of your condition, the specific nature of your symptoms and the overall status of your health. You’ll also be asked about the medications and therapies you’ve tried in the past, and what has and hasn’t worked for you. To gather additional information about your condition, specialized diagnostic laboratory testing may be necessary.

After reviewing all of the factors contributing to your condition, your physician will spend time talking with you about your diagnosis and working with you to create a customized and multi-dimensional treatment plan that addresses not only your immediate pain, but also any possible underlying or co-existing conditions that may be causing or aggravating your symptoms.

We offer a multitude of effective treatment options, including:

We’re here for you, and we want to help. Our goal is to return you to optimal health as soon as possible.

Please call (703) 532-4892 to schedule an appointment, or for more information, please click here.

Additional Resources: Neurofibromatosis Organizations from the National Institute of Neurological Disorders and Stroke